Transcranial Magnetic Stimulation (TMS) Post #1 (better late than never)

Technically, yesterday was Day 1 but I spent the majority of the day asleep and then took a long drive.

The first day also included measurements and a test for my “motor threshold.” What that means is the doctor was basically testing for the point at which firing a magnet at my motor neurons causes my hand to jerk like a reflex. Apparently, this tells them how high to crank it up. I really wanted an “11” but apparently that’s not how it works.

Once they zeroed in on the strength, provided me some earplugs, and readied the machine the doctor moved the magnet to the position for treatment and kicked it on. They started out at about 80% of the power and gradually increased it over the 19 minutes of treatment as my comfort level allowed.

Don’t let anyone kid you. This initially hurts, you feel a pretty awful tension headache as the magnet fires 40 times over 10 seconds and then it allows you to rest for 26 seconds before firing again. The intensity of the pain rises with each pulse and right when you’re like I can’t do this anymore the 10 seconds is over and you get a break. This repeats over and over until the treatment is over. I wonder how many people were tortured to figure out that threshold.

Sleep: How’d I sleep? How many hours? Quality?

As I mentioned, I spent too much of the day asleep. Not all at once, but every time I tried to read a book or watch a show I more or less vanished from consciousness instantly. Apparently, this is a pretty common side effect after the first treatment.

When I finally put away the world for the night. I slept pretty soundly until about 5 am. One of my chief complaints about sleep is that I don’t sleep. I tend to do a very short 3-5hour nap and then start my day all over. I’m hoping the treatment fixes that but it could just be a circadian rhythm thing.

Appetite: How’d I feel about eating? What did I eat?

I didn’t really feel all that hungry throughout the day. When I did eat, it wasn’t very much, and it wasn’t really that exciting to eat. I’m hoping it was just a case of trying something new at a new restaurant. I’d ordered Bibimbap at a fairly classy place (that wasn’t Korean so take from that what you might). I think I mostly felt a little queasy.

Physical Activity: What did I feel capable of doing? What did I ultimately do? How did I feel after?

Not much, not from a depressed not wanting to move standpoint, it was just that I was so tired that I didn’t really ever do anything physical. I finally got tired of repeatedly napping and went for a drive in the northwest portion of Massachusetts. Beautiful drive and it was refreshing.

Motivation: How much proactive motivation did I have? What motivated me? What were my goals? Did I hit them?

I did not feel motivated at all. I’ve been fairly low and depressed leading up to the start of treatment. It took an excess of energy to even write the first post announcing what I was going to be doing with these a couple of days ago.

Baseline Mood: What am I feeling as a baseline.

I was just south of the middle of happy/sad.

Happenings: What’s happened today that may impact my baseline?

Today was mostly about the first treatment, the headache after, hearing about a friend who had also recently started TMS and the difficulties they were having, and fatigue.

Reactions: What were my reactions to the happenings?

A little worried after hearing about my friend. Tired of being tired by the end of the day. I think in the end – I just wanted results now. By the way, it’s usually 3-4 weeks before the treatment starts showing signs of improvement. There’s a long way to go.

Learnings: What did I learn, observe, etc?

I learned that the only thing they could really tell me about how the whole thing actually works is that it works better if you’re conscious. You’d have to be a sleeping professional to be able to sleep through this treatment.

Cancer and Depression: Transcranial Magnetic Stimulation (TMS) blog series announcement

Later this year, in May, I’ll pass through a milestone of 7 years since my cancer diagnosis, treatment, eventual remission and the fight that followed. That fight is still being waged today against a body that never fully recovered. As a result of chemotherapy and the various related maladies that befell me. I now suffer from chronic fatigue, major depression disorder (MDD), pernicious anemia, decreased nutrient absorption (even more so than bariatric surgery causes), Hashimoto’s Thyroiditis, not to mention relationship and career issues, etc.

I started to reconsider having typed all that information especially given my intention to post this as a blog series. My initial thoughts of privacy are overshadowed by a desire to ensure that knowledge of the aftershocks of cancer treatment are known. There have been many advances in treatment options in the last 7 years – I’d hope, right? One of the biggest developments I’ve noticed is that realization by the overall medical community and the general public that cancer and the aftereffects doesn’t end with remission or a clean scan.

The reality is that for many cancer survivors some of the impacts on your life can feel almost as bad as the treatment and the diagnosis. We suffer silently because after a while your doctors tell you that these after cancer symptoms are just “your new normal” and there’s nothing they can do besides prescribe anti-depressants and additional medications that potentially leave you feeling worse.

I’ve grown tired of this repetitive silence and cyclic attempt to feel better. I’m trying something new this week. I’ve been doing some research into TMS (Transcranial Magnetic Stimulation).

https://www.mayoclinic.org/tests-procedures/transcranial-magnetic-stimulation/about/pac-20384625

The results seem promising but as with many treatment options, the depth of knowledge isn’t there. The article I linked to even notes: “Though the biology of why TMS works isn’t completely understood, the stimulation appears to impact how the brain is working, which in turn seems to ease depression symptoms and improve mood.”

I’m not advocating for this treatment currently. I do not yet know if it will have positive effects. I begin treatment on Wednesday, January 22, 2020, and I wanted to start this blog series as an effort to catalog any changes that may occur as a result. To that end, I’m defining the following parameters for the 36 posts to measure perceived changes and document how I’m feeling.

Each entry will include (at minimum):

  • Sleep: How’d I sleep? How many hours? Quality?
  • Appetite: How’d I feel about eating? What did I eat?
  • Physical Activity: What did I feel capable of doing? What did I ultimately do? How did I feel after?
  • Motivation: How much proactive motivation did I have? What motivated me? What were my goals? Did I hit them?
  • Baseline Mood: What am I feeling as a baseline.
  • Happenings: What’s happened today that may impact my baseline?
  • Reactions: What were my reactions to the happenings?
  • Learnings: What did I learn, observe, etc?

I hope this post series will feel helpful to anyone considering the TMS treatment option and look forward to the opportunity to connect with anyone who may have thoughts or questions about the experience. I’d also love to hear from survivors who have had success with other treatments and methods.

Best of luck to us all

~Don

I can’t die, I still have to… (excuses/reasons to live) REDUX

write a book

publish a book

publicly admit that I write poetry

own an antique typewriter that works

inspire someone If I inspire you, let me know, it’s not your praise I seek… I just want to help. 😉 In fact, let each and every person that inspires you know that they’ve helped you in some way before they are gone and can no longer smile inside their hearts knowing they did something great.

leave a letter in a book at the library for someone else to find

start my own business

successfully run a business

use my successful business to give back to the world in some way

learn to play the guitar

relearn to play the piano

start my own web community

write over 500 blog posts

give a TED talk

own a record player

run walk in and complete a 5K

quit a job that I really hate.    link

find a job I love

climb to the summit of a mountain

travel to Egypt and see the pyramids

graduate from college

survive student loans

find a job where I can wear jeans and comfortable shoes to work

buy a house

lose 300lbs   I currently weigh 220 and I love it!

build an old fashioned library for Laura and

fall in love.

stay married. (in progress, thanks Laura!)

have children

fly a plane

fire one of the rifles from my video games

ride a gondola in Venice, Italy

ride every adult-sized roller coaster in the United States

have a vegetable garden

have a vegetable garden, successfully

time travel

send a message in a bottle

pay for a random person’s dinner without waiting for the thank you

learn to paint on canvas

pack some clothes and go on a random road trip to meet random people in random towns all while writing a book incorporating the stories of little American towns

utilize the same trip to find the best local food

dance in the rain

choose education path

take the GRE

submit application for Masters

submit application to Ph.D. school

become Dr. Sedberry (not medical, just an expert title)

survive cancer 

code a text adventure game

try something new once a month for the rest of my life

cook more often than eating out

write at least 6 handwritten letters before 2015

write a song

revive the MFTT story

spend time with friends

make new friends

make an effort to talk to new people

choose our own adventure

have children

Stolen Samples – Cancer Diagnosis

It seemed like an eternity had passed. The doctor had left with stolen samples of my neck tissue. Laura, my wife, rocked on her heels, waiting and watching for the door to crack open and spill the truth about my diagnosis. Her hand searched out mine and found it grasping firmly. I looked into her eyes and lied to her for the first time in my life, I said, “It’s going to be fine.”

The doctor returned wearing a professional and yet somehow cold smile. Her lips parted and out rolled the sum of her expertise.

“Mr. Sedberry upon my initial examination you have cancer. I cannot tell you what specific kind you have until the test results come back on Monday,”

My sanity began to waver but I caught sight of Laura. The look on her face was terrifying. I could see in her eyes that her world was crashing down around her, all of her hopes and dreams were shattered upon the floor. Her eyes were swelling to the brim with tears and she broke into a sobbing, blubbering mess.

I reached out and pulled her deep into an embrace. As her tears soaked my shirt,  I realized that I must stay strong for her and I instantly buried all emotion. I tell her “We will get through this.” I don’t know that I believe it but my words help Laura regain her strength. As Laura grows stronger I felt myself tightening up and sealing in the edges.

Laura kissed me, looked deep into my eyes and said, “Don, I love you, we will get through this, I promise.”

I make the effort to look unconcerned and say with finality, “I know, I love you so much..” I had never felt such fear in my life. I thought that I was going die almost immediately, like I had run out of time, I couldn’t catch my breath and I felt like I was falling fast to the ground. There’s nothing more dizzying than a cancer diagnosis. Worst of all I felt I had to hide those feelings from Laura, that was a mistake I would never redeem myself from.

It all starts somewhere…

The descent into Cancerville began on a week like any other. The only difference was that my throat had become a little ticklish and I had an occasional irritating cough.  There wasn’t any real indication of something dangerous. My week was a simple schedule, no work, my biggest concern was choosing between two job options. I had just graduated from college and I was either going to work for The Prosper Group or for Givelify. I was on top of the world; I was excited for myself that life was just working out..

My throat progressively got worse and a lump developed on the side of my neck and I eventually went to an immediate care clinic, run out of Community East Hospital, to check to see if I potentially had strep throat or something similar. The doctor looked perplexed and suggested that I had a goiter. I didn’t believe his diagnosis because in my mind a goiter is caused by a lack of iodized salt and I live in America… land of the salty goodness. It started to worry me that I didn’t know what was actually wrong with me, though had no idea that cancer was a consideration at this point. I remember being afraid, but not knowing why, or what to be afraid of.

It was ultimately a good thing I didn’t believe him. Within a day, the lump grew in size to the point that it started to crush my windpipe and it increased the pitch of my voice considerably. I spoke high-pitched like a small female child. I remember becoming something just short of terrified as we rushed to the emergency room.

This also caused Laura to panic. While I was at the Community East Emergency Room, Laura informed the physician’s assistant that I had taken pain medicine and drank a bit of beer (honest mistake, I poured it out as soon as I realized it was a bad idea). However, that’s all it took for the physician’s assistant to assume that my high pitched voice was the result of that stupid sip of beer and not of a larger issue. She refused to care about the massive lump in my neck and continued with the assumption that it was a goiter and a subsequent allergic reaction. I was extremely frustrated and did my best to let the physician’s assistant know it, but she never let me talk to the actual doctor because I wasn’t deemed important enough. I will never forget my treatment at Community Hospital and I will never ever return there for anything.

If you are certain you are right, or that your questions and illness isn’t being properly cared for, speak up! Don’t let assumptions ruin your health care!

We called my primary care physician and let him know about my condition. He recommended an ear nose and throat specialist and he in turn ordered a biopsy be performed after looking down my throat and noting no internal reasons for the swollen lymph nodes.